Dear Diary: 2 October 2022

It’s now Wednesday, 5th October. I am feeling a tiny bit better than I was on Sunday when I started this post. On Sunday I made the brief post about diagnosis and then started this journal entry. However, I was feeling so bad that I didn’t manage to get around to doing more of this entry than add the “How was my day today?” card that is at the end.

I think at that time – and questionably still today – the biggest symptom is pain. It isn’t an excruciating agony type of pain, but a gradual wearing you down type of pain. Pain that makes it hard to do anything, hard to concentrate on anything, hard to sleep, hard to lay down, hard to sit up, and hard to stand up.

It’s often been likened to the pain of Flu and I agree with that assessment. It makes me more tired (and I don’t NEED to be more tired let me tell you!), and I can’t concentrate on anything much. The fact that the pain is just about everywhere and feels sometimes like my fingers are ceasing up when I am typing, or my legs feel like I have run a marathon just from getting out of bed…… no actually scrub that…. they feel like that BEFORE I get out of bed, they just don’t feel any better after either!

I am not trying to get an occupational health review from work, but I am not “inspired” by the process so far. We don’t have our own occupational health team here, but have “farmed out” colleagues “well being” to a third party company which is inspirational!