Finally I have a diagnosis from the Doctor of CFS and Fibromyalgia, but…. I have mixed feelings:
I am not convinced about the Fibromyalgia and they have done none of the tests for Fibro (pressure point tests for example). Maybe those tests are not used anymore? The doctor says the pain I have is due to the Fibro, but that implies that CFS has no pain by itself. Clearly this is not the case as the M in ME, is Myalgic. This sounds like the second part of Fibromyalgia. This is for good reason, as this means effectively “Muscle aches and pain”. I think this is just ME (CFS) and that covers everything anyway.
However that isn’t the only issue. When I went for my in person appointment on Wednesday 28th Sept, I saw the same doctor who had prescribed the folic acid and had said he would refer me for CFS if that didn’t help. Well it didn’t help, and then when I see him – he shows me on the screen that it has been recorded as CFS and Fibro, and some time ago – and I wasn’t told!
He DID confirm that this is correct, and that if the college contacted him for conformation or a letter they would be able to respond to that.
