Tomorrow after work I have my fifth CFS appointment with the doctor. He has only given me a single 10 min slot but he is seeing me in person, face to face in the surgery so that may be better. I REALLY hope I get the chance to get to speak about my symptoms properly – so far he has only recorded “tiredness” which says nothing. None of the other symptoms are recorded. I plan to take a printed pdf version of the “About M.E.” section on this site and ask that it is scanned into my records.
What I WANT to happen during the meeting:
- Listens and records my symptoms
- Talks about referal – will he actually DO it now?
- Has a physical examination if he considers that needed.
What I DONT want to happen is just more talk about more tests and more delaying!
I will update this post after the appointment.
Well…. I had the appointment….. and just about nothing happened. He basically just said the same things as he said on the phone but pointed to my record where it was written “CFS and Fibromyalgia”. I hadn’t seen that on my record at all – but I did ask him if that meant if the college contacted them for confirmation they would be able to confirm my diagnosis with the college and he confirmed that was the case. I guess then that’s what I really wanted.
However, no listening to and recording my symptoms. I asked him about referral and he basically said they weren’t going to do that (at least atm). No physical examination. I guess no need if they already have decided and recorded a diagnosis!
For now I will leave it as it is – as I DO have what I need for work and pension. However they are now only really looking at symptoms now – so when I have something that I cant deal with I will ask them for that particular symptom and bring up again the referrals. I may also bring up the treatment plan they are meant to give me (although I know there aren’t many treatments available).
