Almost anyway. Two weeks since my last post.

Our holiday was a little eventful. My wife broke her wrist by falling up some steps into a Weatherspoon’s pub (it was going IN honest!). She didn’t realise she had broken it until it started getting better – then stopped getting better! She went to A&E and they did x-rays and found she had broken one of the smaller bones. It’s now all splinted up and she can’t do much as she keeps needing to use her right hand and it hurts!

I definitely overdid it during the holiday. I wanted to make sure my wife wasn’t “short changed” by me not being able to do much. A few times she said something along the lines of “I can always come back and do stuff with our daughter if we come here later” which is true – but left me feeling inadequate! I therefore pushed myself which I shouldn’t have done.

The first real day we walked over 5 miles, and I said that I would need to take it more easy the next day…. So we walked 7 miles….. throughout the week we ended up averaging 5 miles a day. Was not sensible for me to push myself like that – but I didn’t really feel I had a choice. I really wanted a mobility scooter to be honest and said that if I don’t feel better next year I am going to look at renting one.

We were going to take it easy on the Friday – and then rest ready for going home on Saturday morning. However, we then decided that as we were not going to DO much of anything on Friday afternoon – we may as well just drive back home Friday afternoon and then I would have the whole weekend to recover before work. In the morning we went for a walk – which ended up being over 3 miles but it was nice. We drove home and got home around 3pm (if I remember correctly).

Clearly I was correct about pushing myself too far as once my body could “give in” – I was in bed by around 9pm Friday night, and settled down to sleep (and went to sleep in minutes) around 11pm. I woke a few times – but didn’t actually fully wake up and get out of bed until 1:30pm! Even then I had to have a nap later at 6pm and slept again till 9pm!

Unsurprisingly, I then slipped back into the not able to sleep routine. I haven’t got more than 5 hours sleep in the following week, but was “ok” until Tuesday when I had to do an assignment in the evening. That meant not getting home till around 9:30pm and still had to eat (I try and eat by 8pm at the latest now). This ended up being a late night and a restless sleep – and I paid for it the next day. I had to go early a few times last week – I think Wednesday through Friday I left work early.

This last weekend I rested while I could but had to go visit someone at 1pm. We stayed until around 5pm but that was far too long for me. I started feeling bad 5 mins after leaving the house – and didn’t get better until the next day. Within minutes of arriving I had to sit quietly and close my eyes. My head felt like it was spinning – not dizzy as such but…. well I can’t explain it. Foggy definitely and had to concentrate to speak which was a bit slow and laboured.

On Sunday I felt tired but not too bad – until I decided to pop to ASDA for a few items. I was only in the store for around 15 mins but by 5 mins I couldn’t lift my feet up off the floor and was just shuffling!

So that’s around where we are now. The two weeks off did help – but having the active week the last one probably wasn’t the best idea as I didn’t have as much time to recover afterward before work. I am now back to where I was before my holiday. I am not QUITE as bad at the moment (most of the time) as we know this comes and goes and its not at its worst at the moment.

I am convinced that this is nothing to do with the Folic Acid I’m taking, and so I rather hope its not at a “best” time when that course finishes as I want to be able to say to the doctor – I tried that – didn’t help – its not just that. If I feel better though – the doctor will just say “obviously we were right – all that’s wrong with you was low folate levels!”. Tell that to PEM! That doesn’t happen with Low Folate Anaemia! (at least I cant find any mention of it anywhere).

How was my Week?

As a very quick visual guide to how this last week has been with regard to fatigue, pain, and cognitive dysfunction, I have expressed these as simple lines representing percentages.  From 0 meaning no effect, to 100 meaning maximum affect on the week.  As this is a weekly, I am doing my best to average it out.

Fatigue

  • Background 30% 30%
  • Peak 70% 70%

Pain

  • Background 25% 25%
  • Peak 60% 60%

Cognitive Dysfunction

  • Background 20% 20%
  • 50% 50%